From: Janet

I hope the new med you have is helpful. I definitely want to read about it. Within the last 10 years I have been told that what I have is not MS because the lesions on my brain are not significant. I have been diagnosed with chronic fatigue and fibromyalgia and the new thinking on fibromy is that it is not muscular, but neurological. I have been lucky so far in regards to not getting a dx of MS. But need to get checked again because balance and dropping things seem to be getting worse. Again, I hope that this med works out for you.

Thanks. I believe LDN (low-dose naltrexone) is working for me. I’m not suddenly miraculously cured–there’s a fair amount of damage to my spinal cord that is never going to get better–but I feel as though I’ve stopped getting worse, or at least that I’m getting worse much more slowly.

I have much, much more energy than I had a year ago. I can exercise, and work, and have a life (whereas I used to have to prioritise rigorously). I can’t tell you how much difference that makes. I wake up smiling, looking forward to the day, instead of with a groan, and an o god, how am I going to cope?

I think a lot of autoimmune disease (AID) is stoppable and reversible–at least in the early stages. In my opinion (everyone’s mileage varies), it’s a matter of getting out from under the stress, getting enough sleep, and being very attentive to diet (particularly vitamin D, B12, omega-3 oils and suchlike).

I empathise with the diagnosis dance. I was ill for more than four years before anyone was willing to give me the MS label. Even now, the lesions on my brain are pretty dubious–so small that they may or may not be real. But my spine is definitely splotchy (sigh). Doctors, frankly, don’t know a lot about this stuff; no one does. Anyway, I hope you’re doing okay. I hope you get things sorted. Feel free to ask more questions if you think I can help.